I dont even know how to start this post. When I wrote about Sawyers Diagnoses, it was more of a comfort for me to get it out. I never expected the amount of support we were given. We both come from close families, but its always nice to know that love is strong. We’ve had close friends, old friends, and friends we haven’t talked to in years reach out. In fact I have had friends of those friends sharing their own experiences with craniosynostosis.
The first day I posted about our heartbreak, first I was so surprised at how many of you read the blog without me even posting it to facebook. And after sharing it on facebook I left my computer for only 30 minutes to put Sawyer down for a nap. I came back to find my computer lit up with messages. I cried through most of them. Just deeply touched at how many of you put your heart out with love and support. I found a quote online after Sawyers Appointment when I was feeling really down. “Shared joy is double joy, shared sorrow is half a sorrow.” I felt like it was exactly true. I have felt so lifted since sharing what we are going through. Ive had flowers sent to us to brighten our day, cards and even received a little teddy bear with scrubs on. He will definitely be accompanying us to the hospital.
We have an appointment on Wednesday with the neurosurgeon. I’m actually looking forward to it, and getting some answers. I will again update after the appointment about any changes. Until then we are just enjoying all the little moments. He is changing in so many ways and I’m not going to miss any of that worrying about the future.
Again just a huge thank you for all the well wishes all of you have sent Sawyer this week.